I love this photo of my special needs son at about 11 months. I gave him one of his first table foods and as you can see he went to town. Then, when I asked for his photo, he happily smiled! He doesn’t notice the deformities of his head or his blue glasses. The pride in his being a big boy, eating his own food was his moment, and he knew it.
The moment captures what is really important–his new-gained ability. The fact that he rarely mastered suck and swallow in his bottle feeding, or had few foods to choose from, mattered. Despite the need for glasses and his inability to walk (which was still almost 2 years away), he could feed himself with mashed vegetables.
Despite his exceptionally low muscle tone and 9 medication, his smile radiates joy.
What matters is what is on the inside
I was raised in a normal household and family, so everyone around me was normal and I rarely met a special needs person. Then, when my special needs son was born, and he didn’t look perfect, I relearned beautiful. I quickly realized how perfect my son really was! He smiled at us when he could, and his personality showed through. He gave hugs when he could, but we knew he was in there and I gave him as much love as I could.You could see his heart.
So when I see those photos of special needs children where they look almost physically perfect, I think, You missed the point! Their portrayal on the cover of magazines lacks a lot of truth sometimes. It appears that the most normal children are chosen for a photo shoot, not the imperfect ones. The real and the raw is oftentimes missing.
- No, or few devices
- feeding tubes
- behavior problems
- mental illness
- everyone is looking at the camera
- and everyone has all of their limbs
I think sometimes the media forgets that their idea of perfect doesn’t really reflect God’s perfect.
God created our children
I know we know this, but when all we see is how we need to make them normal and not accept them, we miss God’s plan. He has a plan and a purpose for our children’s lives, as they are.
Sure, we can seek out healing for each and every step of the way, but at some point, we need to remember that special is God’s plan too.
While we may look for that miracle cure, we really need to remember that the LORD wants the hearts and minds of His people, so that His plans and purposes are carried out.He wants you and I to share the love of Christ with our children and the world around us. Healing our children’s condition is not the end all. Even in John 9:1-3, Jesus healed the blind man, not for everyone else, but to bring glory to God.